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Z

Zain

Male / 5 years & 5 months

Share the first part of Zain's story for readers on Sleuth! When and why did you start to feel concerned?

No answer added.

Roro

Roro

Male / 3 years & 7 months

Share the first part of Roro's story for readers on Sleuth! When and why did you start to feel concerned?

Ronan is non verbal. He did develop some speech around 2 and then promptly lost it all. He’s always been physically way ahead so we tended to get ignored about concerns but have finally been able to get a diagnosis and therapy.

R

RosieSue

Female / 3 years & 7 months

Share the first part of RosieSue's story for readers on Sleuth! When and why did you start to feel concerned?

She couldn’t hold her head up till after a year old. She was very far behind her twin brother who was hitting milestones right on time or early. She was a floppy baby. She couldn’t coordinate suck swallow and breathe. She barely ever cried or made noise. Didn’t start babbling till over a year old.

LittleBear

LittleBear

Female / 3 years & 4 months

Share the first part of LittleBear's story for readers on Sleuth! When and why did you start to feel concerned?

My child (last of 4) cried a lot. She was the epitome of colic. I exclusively breastfed her and constantly held her. I assumed her physical delays and speech delays were a result of the catering. It wasn't until we noticed her feet dragging a little that we realized we should have her evaluated. The physical therapist explained hypotonia/low muscle tone to us. Sadly, no one explained that it would be lifelong and the other delays that often come with it.

D

Danny

Male / 10 years & 8 months

Share the first part of Danny's story for readers on Sleuth! When and why did you start to feel concerned?

No answer added.

Jess

Jess

Female / 13 years & 7 months

Share the first part of Jess's story for readers on Sleuth! When and why did you start to feel concerned?

Headaches and dizziness

Jeri

Jeri

Female / 10 years & 7 months

Share the first part of Jeri's story for readers on Sleuth! When and why did you start to feel concerned?

Easily distracted. Learning issues

I

Izzy

Female / 4 years & 8 months

Share the first part of Izzy's story for readers on Sleuth! When and why did you start to feel concerned?

No answer added.

Ellie

Ellie

Female / 1 year & 3 months

Share the first part of Ellie's story for readers on Sleuth! When and why did you start to feel concerned?

Ellie had her first seeming allergic reaction when she was eating a mix of apple, carrot, and ginger baby food (from a company called Little Spoon that we still like and recommend). She had apples and carrots and ginger separately in the past. But this time, she ate more than the usual amount of the baby food during a trip to the park with her nanny.

Zuzu

Zuzu

Female / 4 years & 2 months

Share the first part of Zuzu's story for readers on Sleuth! When and why did you start to feel concerned?

I distinctly remember leaving a message for my pediatrician after Zuzu's 8 month appointment because I had forgotten to mention that she wasn't babbling. She's my second child so I knew that the expression of noise was very different than babbling. My pediatrician said to "wait and see" and that maybe her bilingual environment contributed to some form of 'normal delay.' I took her advice and kept an eye on it. I got most concerned when Zuzu was 15 months old. A family member wondered why her face was asymmetrical and that tipped me over to decide to go to a neurologist. I was already aware - and concerned - that she was behind with walking and talking, and this seemed like yet another issue (incidentally, I didn't notice the asymmetry myself!) To be honest, I had somehow convinced myself that she probably had an issue but that the issue wasn't serious. After all, there are a thousand reasons why a child would be talking late and I figured it was mild. My mind didn't put all the symptoms together b/c I guess I was in denial about the bigger picture - it's hard to see that there's something wrong with your child. Eventually, by 18 months, I finally 'saw' that all these small concerns might actually add up to something more important that I had been missing.

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