Share the first part of JK9's story for readers on Sleuth! When and why did you start to feel concerned?
She was mentioning a tightness of the chest, feeling tired and ‘unwell,’ and a fever of 40-42 [celsius] that I treated with Tylenol/Advil and cool baths but couldn’t shake. At the 48hr mark I called my Dr. and she suggested we go to the Hospital for a chest X-ray in case it was asthma related. The X-ray showed some reactive passages, but as we waited in the waiting room for the doctor to see us her Tylenol/Advil wore off and her fever spiked and she was face flushed face, grey lips, dizzy, started vomiting, admitted she was feeling really unwell.
Share the first part of France's story for readers on Sleuth! When and why did you start to feel concerned?
I had covid starting from July 13th. While my family wasn't tested, I assume they all got it, too. France got a fever starting on July 16th. I started to get concerned on September 4th when she returned back from school saying, "I am hot." Her temperature was 99.4. I called the clinic and asked, "Should I be concerned? Is it a cold? What should I do?" My daughter told me not to worry. They were out in the sun at school then went back inside where there was A/C, so she said that the drastic change in weather probably made her sick. The nurse told me that if the temperature gets higher, I should go to the ER. I couldn't do much. That evening, we went out for dinner. She fell asleep in car, and her eyes were starting to get red. I woke her up in the restaurant, but she kept putting her head down. I kept telling her to eat - she's normally not a picky eater - but she said, no, I'm tired. She started eating a cheeseburger and she then she vomits one time. As i saw her vomiting, I lost my appetite because I was worried something was wrong. I told my husband, let’s just go. I’m going to rush her to the hospital, let’s see what’s going on. I feel like she got covid again. I thought she had a cold. I'd tell her, 'let’s go to the hospital,' but she said, 'no i feel better." I went home, took her temperature and gave her Motrin. She broke the fever every 8 hours. Then at 5am, another fever was kicking in. I gave her Motrin, another 8 hours later it stopped, and then started at 6pm again. As soon as i took her to the children's hospital, her fever was at 101, and had started having diarrhea. She had pain when she was eating so whenever she was eating, her stomach would hurt. Whenever she coughed, her chest would hurt. I told them everything and they told them she had covid. They said that it looks like just a stomach bug, if she doesn’t get better in 2-3 days, then bring her back. On Sunday, you know, we to grocery shop, and we made breakfast. She’s a good eater, she’s not picky. I notice she didn’t want to eat anymore. "I'm just going to drink. i’m not hungry. It’s just that my tummy is hurting." The next day, on Labor Day, i took her to children’s hospital in northwest. By now, her fever would've otherwise be broken; she’s good at breaking down fevers by 2-3 days. She’s now having stomach pain when she eats, more diarrhea, vomiting more often, eyes were super read. "No, mom, it’s still a stomach bug. It’ll last up to 5 days." I felt like i was walking out with no answers. My gut was saying there’s something wrong and they wouldn’t help me. I called my husband as soon as I got out, they say it’s a stomach bug. he said, they’re probably right. I know that when she’s sick and something is an infection, it doesn’t get treated right away, the fever doesn’t go away. I recognize my child. My husband and I were listening her sleep. She was breathing like she’s running. I woke her up and she said my tummy is hurting really bad, it’s hurting a lot. I took her to another hospital, Washington Regional hospital, and I told them, you know what, she has been in children’s hospital with a stomach bug. They said: we need to take her to the covid ward, this is how covid starts. I said, "this is not covid, we already had it in July. The time lapse is too soon to rewatch it because she should still have antibodies. They said, "nope, we still transfer to that covid section. We’re still going to do that." At that point, i didn’t know what to argue. They’re the doctors, they know more than I do. I had the baby with me and her sibling. so they do a ct scan, bloodwork on her, and it comes out to be she had an inflamed gallbladder and liver. In the CT scan, it showed she had a fatty liver. She had really swollen lymph nodes on her stomach. She was super dehydrated. She wasn’t eating anymore. She quit eating. Even water would hurt her stomach. Anything she ate hurt her. And she would get nauseous.
Share the first part of Pawishhh's story for readers on Sleuth! When and why did you start to feel concerned?
No answer added.
Share the first part of K's story for readers on Sleuth! When and why did you start to feel concerned?
Keith was a good baby. He met all his milestones early; he was rolling over, crawling and walked at 8 months. The area he lagged in was speech. Around 6 months, I noticed he wasn’t doing any babbling. He started having chronic ear infections and had tubes placed in his ears at about 9 months so I attributed that to his slow developing speech. His speech began to pick up at about 18 months. He started stringing words together and talking in short sentences. He was interested in other children and would play with neighborhood kids. His father is in the military and deployed right before K’s 2nd birthday. Towards the end of the deployment Keith began losing words, he stopped talking and developed what I called gibberish, non-verbal noises he would make constantly replaced language. He stopped being interested in other kids, the friends he used to play with, he stopped interacting and talking with them and stopped making eye contact. It was very confusing and concerning for me so I referred him to early intervention for an evaluation.
Share the first part of YonasB's story for readers on Sleuth! When and why did you start to feel concerned?
No answer added.
Share the first part of Grady's story for readers on Sleuth! When and why did you start to feel concerned?
No answer added.
Share the first part of S.'s story for readers on Sleuth! When and why did you start to feel concerned?
After the age of two, these was a gradual regression in his speech development. He began to gradually loose his ability to say the alphabet and numbers as he used to and slowly began replacing his words with grunting sounds. This later became associated with repetitive flapping of the hands and repeating the same you tube kid video over and over again.
Share the first part of Roro's story for readers on Sleuth! When and why did you start to feel concerned?
Ronan is non verbal. He did develop some speech around 2 and then promptly lost it all. He’s always been physically way ahead so we tended to get ignored about concerns but have finally been able to get a diagnosis and therapy.
Share the first part of RosieSue's story for readers on Sleuth! When and why did you start to feel concerned?
She couldn’t hold her head up till after a year old. She was very far behind her twin brother who was hitting milestones right on time or early. She was a floppy baby. She couldn’t coordinate suck swallow and breathe. She barely ever cried or made noise. Didn’t start babbling till over a year old.
Share the first part of LittleBear's story for readers on Sleuth! When and why did you start to feel concerned?
My child (last of 4) cried a lot. She was the epitome of colic. I exclusively breastfed her and constantly held her. I assumed her physical delays and speech delays were a result of the catering. It wasn't until we noticed her feet dragging a little that we realized we should have her evaluated. The physical therapist explained hypotonia/low muscle tone to us. Sadly, no one explained that it would be lifelong and the other delays that often come with it.
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