Insights

From Parents

CHARGE Syndrome

1 child has been diagnosed with CHARGE Syndrome on Sleuth.

CHARGE syndrome (formerly known as CHARGE association) is a rare syndrome caused by a genetic disorder… About two thirds of cases are due to a CHD7 mutation. CHARGE syndrome occurs only in 0.1–1.2 per 10,000 live births; as of 2009 it was the leading cause of congenital deafblindness in the US.

Learn more:

Wikipedia Link

The CHARGE Syndrome Foundation

What else is paired with CHARGE Syndrome?

American Sign Language (ASL)
Difficulty breathing
Difficulty swallowing (Dysphagia)
Feeding Therapy
Gastrostomy tube (G-tube)
Hearing issues
Nasogastric tube (NG tube)
Occupational Therapy
Physical Therapy
Tracheostomy
Vision issues

American Sign Language (ASL)

1 parent found American Sign Language (ASL) helpful for CHARGE Syndrome. Read their notes below.

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Feeding Therapy

1 parent found Feeding Therapy helpful for CHARGE Syndrome. Read their notes below.

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Gastrostomy tube (G-tube)

1 parent found Gastrostomy tube (G-tube) helpful for CHARGE Syndrome. Read their notes below.

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Nasogastric tube (NG tube)

1 parent found Nasogastric tube (NG tube) helpful for CHARGE Syndrome. Read their notes below.

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Occupational Therapy

1 parent found Occupational Therapy helpful for CHARGE Syndrome. Read their notes below.

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Physical Therapy

1 parent found Physical Therapy helpful for CHARGE Syndrome. Read their notes below.

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Tracheostomy

1 parent found Tracheostomy helpful for CHARGE Syndrome. Read their notes below.

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