S.

S.

Male / 7 years & 5 months

S.’s Journey

Share the first part of S.'s story for readers on Sleuth! When and why did you start to feel concerned?

After the age of two, these was a gradual regression in his speech development. He began to gradually loose his ability to say the alphabet and numbers as he used to and slowly began replacing his words with grunting sounds. This later became associated with repetitive flapping of the hands and repeating the same you tube kid video over and over again.

What was your experience, if any, seeking a diagnosis or treatment?

Initially over a period of 6-8 months, the diagnosis of Autism was dismissed and no one really said he had it until I found a neurodevelopment pediatrician myself and booked an appointment. It was only then that I was given then diagnosis.

Do you have any other thoughts or advice you would like to share from this experience?

Early diagnosis is key and watch for loss of words. Sometimes it will be subtle and we dismiss it as the child just being too young.

Timeline

Below is a timeline of S.’s observed symptoms, diagnosed conditions, and treatments and therapies.

S.’s Notes

Signs & Symptoms

2020

Stimming

Sign or Symptom
At 5 years & 6 months
Severe

Ongoing Symptom

Observed at 5 years & 6 months

Observed: Many times a Day

Severe

Spitting

Sign or Symptom
At 5 years & 6 months
Very Severe

Ongoing Symptom

Observed at 5 years & 6 months

Observed: Always

Very Severe

Delayed speech or vocabulary

Sign or Symptom
At 5 years & 6 months
Very Severe

Ongoing Symptom

Observed at 5 years & 6 months

Observed: Always

Very Severe

Sensory issues

Sign or Symptom
At 5 years & 6 months
Severe

Ongoing Symptom

Observed at 5 years & 6 months

Observed: Many times a Day

Severe

Diagnoses & Conditions

2020

Autism

Condition or Diagnosis
At 5 years & 6 months
Very Confident

Condition

Diagnosed at 5 years & 6 months

Very Confident

ADHD / ADD

Condition or Diagnosis
At 5 years & 6 months
Confident

Condition

Diagnosed at 5 years & 6 months

Confident

Related To

Treatments

2020

Applied Behavioral Analysis (ABA)

Treatment or Therapy
At 5 years & 6 months
Neutral

Ongoing Treatment

Began at 5 years & 6 months

Neutral

Comments

Initially, I felt it helped slow down his regression, but then I feel we are back to square one...especially with the COVID pandemic that has affected his routine flow in learning.

Related To

Melatonin

Treatment or Therapy
At 5 years & 6 months
Helpful

Ongoing Treatment

Began at 5 years & 6 months

Helpful

Comments

He has issues sleeping at night due to his hyperactivity. Also wakes up in the middle of the night frequently.

Related To

Doctors

2020

ABA learning center

Specialist
Positively

Specialist

Positively

Neurodevelopmental specialist

Specialist
Children's National
Very Positively

Specialist

Children's National

Very Positively

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