Female / 4 years & 1 month

RosieSue’s Journey

Share the first part of RosieSue's story for readers on Sleuth! When and why did you start to feel concerned?

She couldn’t hold her head up till after a year old. She was very far behind her twin brother who was hitting milestones right on time or early. She was a floppy baby. She couldn’t coordinate suck swallow and breathe. She barely ever cried or made noise. Didn’t start babbling till over a year old.

What was your experience, if any, seeking a diagnosis or treatment?

We are still working on getting a diagnosis. I kept pushing to see neuro for these staring spells she would have. Finally after genetics couldn’t figure her out they passed us on to neurogenetics and he is trying to figure out what’s going on.

Do you have any other thoughts or advice you would like to share from this experience?

RosieSue's parent hasn't answered this question yet.


Below is a timeline of RosieSue’s observed symptoms, diagnosed conditions, and treatments and therapies.

RosieSue's Medical Notes

Signs & Symptoms

Doctors & Specialists

Taylor Wang

Institution: RosieSue's parent isn't sure

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