RosieSue
Female / 5 years & 5 months
She couldn’t hold her head up till after a year old. She was very far behind her twin brother who was hitting milestones right on time or early. She was a floppy baby. She couldn’t coordinate suck swallow and breathe. She barely ever cried or made noise. Didn’t start babbling till over a year old.
We are still working on getting a diagnosis. I kept pushing to see neuro for these staring spells she would have. Finally after genetics couldn’t figure her out they passed us on to neurogenetics and he is trying to figure out what’s going on.
RosieSue's parent hasn't answered this question yet.
Below is a timeline of RosieSue’s observed symptoms, diagnosed conditions, and treatments and therapies.
Ongoing Symptom
Observed at birth
Observed: Always
Moderate
Ongoing Symptom
Observed at birth
Observed: Always
Very Severe
Ongoing Symptom
Observed at birth
Observed: Always
Moderate
Ongoing Symptom
Observed at birth
Observed: Many times a Week
Moderate
Specialist
IU Health Riley
Very Positively
Specialist