LuckyJoJo
Female / 2 years & 2 months
Lucky started experiencing infantile spasms about 2 months ago, when she was just 3.5 months old. They were subtle movements that I only caught because 1. She is our first baby- so we stare at her all the time and 2. It was happening in a cluster. Prior to these spasms, Lucky seemed to be slow in reaching milestones (although she was still very young), but was healthy.
Because Lucky's spasms were in a cluster, I was able to capture them on video and send them to my pediatrician that day. We went in and were directed to the ED, where we were admitted and got an EEG the next day. After googling "baby having spasms" I saw a video of infantile spasms and knew that was what Penny had. I was able to find several facebook support groups which have been exponentially helpful in offering advice and support!
Just keep swimming!
Below is a timeline of LuckyJoJo’s observed symptoms, diagnosed conditions, and treatments and therapies.
Ongoing Symptom
Observed at 3 months
Observed: Many times a Day
Severe
Ongoing Symptom
Observed at birth
Frequency: 142's parent isn't sure
Severity: 142's parent isn't sure
Ongoing Symptom
Observed at birth
Frequency: 142's parent isn't sure
Severity: 142's parent isn't sure
Condition
Diagnosed at 3 months
Very Confident
Condition
Diagnosed at 4 months
Very Confident
Treatment
Began at 3 months
Unhelpful
Ongoing Treatment
Began at 4 months
Neutral
Ongoing Treatment
Began at 5 months
Neutral
Ongoing Treatment
Began at 5 months
Neutral
Specialist
Specialist
Randal Childrens Hospital
Positively