Emmita

Emmita

Female / 9 years & 5 months

Emmita’s Journey

Share the first part of Emmita's story for readers on Sleuth! When and why did you start to feel concerned?

At about 6 years old, E was making repetitive noises, it started with humming, then we noticed throat clearing. It eventually evolved to other repetitive sounds and phrases. Then we noticed repetitive movements, head shaking, mouth widening, rapid eye blinking. This caused us to look even further back, old photos/videos and we noticed things that were a little “odd” in the past but we didn’t exactly think of as a big deal may all have been a correlation to what we were noticing now: motor and vocal tics.

What was your experience, if any, seeking a diagnosis or treatment?

In the beginning it was frustrating (due to the pandemic) in locating which route we needed to go for her. Eventually she was screened by a psychiatrist who diagnosed her with Tourette Syndrome. From there, she continues to see a therapist, occupational therapist, & has seen a neurologist.

Do you have any other thoughts or advice you would like to share from this experience?

In order to be diagnosed with Tourette’s a child has to be exhibiting at least two motor tics (repetitive movements) and one vocal sound (repetitive sound) for more than a year. Tourette’s and the tics are usually the least of your concern as this diagnosis usually comes with a list of other mental health struggles : ADHD, OCD, Anxiety, Sensory processing difficulties. Also, Tourette’s is not what you see in the media, “constant cursing”. This is known as cropolalia. Less than 10% off people with Tourette’s suffer from this.

Timeline

Below is a timeline of Emmita’s observed symptoms, diagnosed conditions, and treatments and therapies.

Emmita’s Notes

Signs & Symptoms

2021

Motor tics

Sign or Symptom
At 6 years
Moderate

Ongoing Symptom

Observed at 6 years

Observed: Many times a Day

Moderate

Vocal tics

Sign or Symptom
At 6 years
Moderate

Ongoing Symptom

Observed at 6 years

Observed: Many times a Day

Moderate

Tics

Sign or Symptom
At 6 years
Moderate

Ongoing Symptom

Observed at 6 years

Observed: Many times a Day

Moderate

Fidgeting

Sign or Symptom
At birth
Severe

Ongoing Symptom

Observed at birth

Observed: Always

Severe

Diagnoses & Conditions

2021

Tourette’s syndrome

Condition or Diagnosis
At 6 years
Very Confident

Condition

Diagnosed at 6 years

Very Confident

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