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Parents on Sleuth
Parents on Sleuth

Sleuth is a growing crew of parents working together for better answers.

We gather stories and info directly from parents. With smart technology, we help each other identify solutions, resources, and cures.

We are all Sleuths

Our stories matter and we care about the details. After all, we are the experts of our children. Here are some of our stories.



10 months old

Do you have any other thoughts or advice you would like to share from this experience?

Just keep swimming!



2 years & 8 months old

Do you have any other thoughts or advice you would like to share from this experience?

If your child has a fever that won’t go down, don’t wait!! Take them straight to the hospital after the second day of fever. My son had this and if we hadn’t trusted our instincts, I believe we would’ve lost him. Please people, wear a mask and don’t be going out unless it’s necessary. They told my husband that in the blood results they can see if the organs are affected. Also an ultrasound can also help see if the organs are inflamed. The heart usually swells up and so does the liver. When the parents take their child to the ER, i recommend them to request an ultrasound just in case.



4 years & 9 months old

Do you have any other thoughts or advice you would like to share from this experience?

My advice is to go with your gut if you think something is wrong. And, if you feel that something is wrong but find internal resistance to accepting it, just remember that Early Intervention can really, really, REALLY help your child and you don't want to window of time on that to close. For me, the best way to advocate for Zuzu was to try to figure out the source of the problem. Also: Facebook groups were useful to find and vet doctors. You still need to vet them yourselves, but they're useful for local resources and to get started on making phone calls to specialists.



21 years & 10 months old

Do you have any other thoughts or advice you would like to share from this experience?

Not at the moment!

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At 24 months old, among children with Cortical Visual Impairment

70%have started putting two or more words together
30%have not yet started putting two or more words together
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The Sleuth Story

Sleuth was born out of frustration and hope: Frustration from endless hours scouring the Internet for clues about our children’s symptoms. Hope because we found other parents on similar journeys. What if parents could share their experiences with exactly the people who need them?

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Please use Sleuth responsibly.Content and stories on are not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or qualified health provider with any questions you may have regarding a medical condition.


We’re called “Sleuth” to reflect parents who persist in the hunt for better information. But “Sleuth” also means a family of bears. We like that.

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